Sunday, October 4, 2015

“The Price We Pay To Become Acquainted With God”



 Sometimes Brent and I will be going through life when something reminds us of our awful experience.  I think about the mounting stress we went through and the panic starts to rise inside of me, like post-traumatic stress disorder only not as severe as someone who has gone to war.   My heart starts to race and my chest tightens, then I force myself to think of something else, anything else.  We’ve learned it’s important to address these things and not burry them away so we talk for a bit, remember what we’ve been through, and then share with each other our gratitude of how things have changed for us.   Healing still needs to happen and one of the ways it happens for me is writing it out on these blogs.  The other week when we were driving up to St George to see a Tuacahn play with my parents, memories of the drive from Denver to Las Vegas came pouring in.  As we were talking about it Brent said, “I don’t know how I physically did it knowing the mental state I was in.  How did I drive that moving van all by myself with all that wind, over mountain passes and in the dark after everything we had been through?”   Then I thought about our move.  It was the great crescendo after a string of difficult times; Colorado’s last kick in the pants. 

One of the things I have grown to greatly dislike is when I am surviving a difficult trial and someone with good intentions tries to minimize what I am experiencing by saying, “At least you aren’t going through what the pioneers went through”.   When did that ever become the right thing to say?  How can you even compare my life to theirs?  Everything is different, there is no way to really even put the two experiences side by side.  I have pioneer ancestors that were driven out of Nauvoo and Brent has pioneer ancestors that came across the plains in both the Willy and Martin handcart companies.  There is no way for me to understand their pain and suffering they experienced, but likewise there is no way to compare it to what I am currently going through in this day and age.  The one thing I can almost guaranty is they suffered and struggled and almost lost the strength and the will, but sometimes putting one foot in front of the other and moving forward against impossible odds is the only choice there is.  That is one thing I can relate to, putting one foot in front of the other and clinging to your faith like it is an unraveling thread because there are no other options.  That is often when heaven finally intervenes on your behalf.

One of my favorite church history story’s is when a man that was in the handcart companies stood in a Sunday School class years later and bore witness to what he experienced.  This is a portion of the account that was given: 

“Not one of that company ever apostatized or left the Church, because everyone of us came through with the absolute knowledge that God lives for we became acquainted with him in our extremities.”
“I have pulled my handcart when I was so weak and weary from illness and lack of food that I could hardly put one foot ahead of the other. I have looked ahead and seen a patch of sand or a hill slope and I have said, I can go only that far and there I must give up, for I cannot pull the load through it.” He continues: “I have gone on to that sand and when I reached it, the cart began pushing me. I have looked back many times to see who was pushing my cart, but my eyes saw no one. I knew then that the angels of God were there.”
“Was I sorry that I chose to come by handcart? No. Neither then nor any minute of my life since. The price we paid to become acquainted with God was a privilege to pay, and I am thankful that I was privileged to come in the Martin Handcart Company.’” (Relief Society Magazine, Jan. 1948, p. 8.)



I may feel it is out of context to compare my life to the pioneers’ lives because it is like comparing apples and oranges.  But, it does not lessen the absolute love, respect and appreciation I have for their experience.  And no, you cannot compare what I am about to share with you with anything they experienced or anything you’ve experience.  What you can take away from my experience is that God in all his glory allows us to suffer and experience life’s sorrows, but he also offers us help and the Savior’s atonement.     

You may know by now from my previous posts some of what we experienced in Colorado.  Leading up to our move to Las Vegas it didn’t feel like we were ever going to leave our suffering or move on from our sorrows and I honestly didn’t think it could get any worse, and then it did.

I never felt as alone as I did during the weeks leading up to Brent’s job offer.  I had gotten close to losing my baby during his birth, had literally seen his heart rate almost turn to zero.  I had hemorrhaged, was in danger of losing my own life and had a C-section to save us both.  Nothing could have prepared me for how awful recovering from a C-section was.  I remember Dr. Lamb very sternly telling me that for the next six weeks I was not to do anything but take care of the baby, that it was my turn to be taken care of and that it was very important in order for me to heal. That didn’t even come close to happening.  Brent had no other choice but to be gone looking for employment.  January and February are the times most law firms hire and it was a small window of time for Brent to get work and we could not afford his attention to be put anywhere else.  He was gone most of the day applying for jobs and talking to contacts.  When he was home he was often preoccupied with how he would get employment.  My parents had sold their home and were literally packing up and leaving for Utah at that time as well. 

We had moved out of their home six months prior and moved into a friend’s basement when it was offered to us because of the stress we were putting on my parents.  They were trying to sell their house at the time and we sincerely thought we would only have to stay in our friend’s basement for a month or so.  We were not prepared to be there for six months.  Both Brent and I were mortified that we were still in their basement and Brent was still out of work.  They were amazing for letting us stay as long as they did and helped us so much.  When Ethan was a couple of weeks old my friend came down with pneumonia.  She was also expecting a baby and I felt awful for her and wanted to do more to help her.  But I was still recovering from my surgery and after almost loosing Ethan during his birth my mommy protective instincts went into full force and I was constantly petrified that he would also get sick at such a vulnerable age.  Unfortunately I couldn’t be there for my friend in her time of need like she had been there for me.  I tried to do little things.  I even shoveled their driveway once even though I was not supposed to lift anything but it wasn’t enough to get rid of the mounting guilt I felt over the whole situation. 

Brent got the job offer we so desperately needed in Las Vegas.  He left three days later and like I wrote in a previous post I basically feel apart.  I had to pack up what we had in our friend’s basement on my own with a nursing baby and two young kids and everything felt like it was one step forward then two steps back.  I could barely stay calm and civil.   I had to constantly fight my instincts to go bat crazy on my kids for just being kids.  Children innocently have the ability of taking a situation and making it a hundred times more difficult just by being children.  The more children you have involved the more complicated the situation becomes and I was consumed by it.  It was like drowning slowly, I could not get my head above water. 

Brent flew back three weeks later so we could move the next day.  The plan was we would hire a moving company to pack up our stuff and drive it to Las Vegas. I had spoken with a sales person at a moving company and he had quoted that it would cost about $1300.  We planned to pay for it with our tax return and I had to put down a $550 deposit.  I thought it was a great deal and a blessing……….little did I know.   Most of the stuff we had in our friend’s basement was our children’s things and baby stuff but you know how much space that can take up then we would have the drivers go over to our storage unit and pack that up.  Since I was nursing Ethan and driving long distances had been difficult with our kids in the past I really wanted Brent to drive.  We stayed up until 2 am to finish packing and woke up at 6 am so we could be ready for the packers.  When Abby woke up she had a high fever and was very sick.  Then when the packers showed up at 8 am all the despair I had been feeling from all the stress reached a whole new level.  The movers looked baffled and told me the $1300 wouldn’t even cover what we had in the basement and wanted to look at our storage unit before they packed anything.  They looked at our storage unit and the new estimate was in……..$5,000.00.  I had a full on panic attack and started screaming at them that they had to give us our $550 dollars back so we could rent a U-Haul.  They told me it was nonrefundable and I started screaming that I had been lied to by their sales person.  Suddenly Brent and I switched rolls and he was the level headed, calm, problem solving one and went into full gear renting a truck and calling the missionaries to come help us move.  Thank goodness we had three sets of missionaries in our ward at the time.

Our plans completely changed and suddenly we were no longer leaving at 9 am to drive to Las Vegas.  We had a friend we actually knew from when we lived in Las Vegas before  and currently lives in Colorado answer our call for help on FB.  Even though he lived 20 minutes away he showed up and helped at the storage unit as well as the six missionaries helping to pack us up.  My kids were in the car most the time because Abby was battling a 103 degree fever.  Half way through the packing I wondered about taking her to the doctor because she had a severe cough.  Ethan was sleeping a lot because he had gotten his vaccines the day before but I had to stop packing a few times for about 45 minutes to an hour to nurse him throughout the day.  We filled up the truck and had to rent an additional trailer for the stuff we still had in our friend’s basement.  After the storage unit we had to carry all our stuff up a hill from the basement to the truck so even though it was half the amount of stuff it took twice as long.  Finally at 4:00 pm the last item had been packed and then I heard a blood curdling scream.  Parker had put his hand on the back of the truck at the same time someone was slamming the metal door to the truck shut.  When I saw his hand it looked broken and I wondered if we should even leave with Abby sick and Parker’s hand severely hurt.  Ethan also absolutely hated his car seat and would scream hysterically every time he was buckled in.  I was beyond the point of being overwhelmed.

 I held it together long enough to say a quick good bye to my friend and her kids but as soon as I got myself and my kids in the car and saw Brent pull away in the moving van I started to violently sob.  My poor children; I’m so glad they were fairly young during this time in our lives and forgave easily because both Brent and I were a complete mess during the entire six months but most especially the last couple months.  I sat there barely able to breathe, knowing there were winding roads and mountain peaks both Brent and I would have to drive.  Brent was in a moving van with a trailer and I would have to drive with the kids stopping every few hours to nurse.  Knowing I would be driving in the dark after the day we had was almost more than I could handle.  I had lived in those Rocky Mountains and I knew they were a force to be reckoned with.   Not only that but all three of my children were not doing well.  It was at this point that I remembered a blessing I had received just before Brent had been offered a job.

I remembered being told that during this time of difficulty I would have the company of angels and that I would especially have the company of my brother.  I was also told in the blessing that the Lord saw the sacrifices I had encountered and been called upon to face as equal to what the pioneers had faced.   I turned to my kids and told them to be reverent for a very special prayer.  I prayed earnestly that Heaven would come to our aid, that even though we were blessed with vehicles we still had a long and dangerous journey ahead of us and I asked that all of us would have angels to help us and accompany us like the pioneers did on their journey.   I told Heavenly Father that I was too weak, both spiritually and emotionally, and I needed Heaven to come to my aid.

We jumped on the E-470 that turned into the C-470 then came to a complete stop.   There had been an accident on C-470 during rush hour and we ended up spending almost two hours in it before getting off at the mouth of the canyon leading into the Rocky Mountains.  I hadn’t even left Denver yet before I had to stop and nurse my baby; we were just starting our journey at 7 pm at night.  I drove up the ramp heading onto the I-70, my kids were listening to the Frozen sound track and then I felt it.  Heaven came and Cordell was there.  It was like a butterfly landing on my hand.  I was scared to make any sudden moves I didn’t want him to fly away.  I’m not sure if it was just Cordell or if each one of my children had someone there to help them but they were calm and the best behaved they had ever been.  Ethan slept the whole way, Parker’s hand was doing much better and Abby’s fever lessoned and she wasn’t as sick.  I kept quietly talking to Cordell and begging him not to leave.  I can count the times I’ve felt him in my life since he passed on one hand and I was worried he would leave.  The kids asked me if they could keep listening to Frozen over and over.  I joke that I must have heard, “let it go” 200 times on that trip.  For whatever reason it brought them comfort and I was able to handle it without getting tired of listening to it.  I thought it was a little prophetic for our situation hearing, “Let it go, let it go” over and over again as we crossed the Rocky Mountains and state I had loved so much.  I also desperately wanted to let go of the pain and the anguish and with Cordell supporting me it was somewhat of a start. 

We got to Fruita, Colorado late and stayed in a hotel there.  Because Brent had to go so slow I would pass him and get pretty far ahead then I would have to stop and nurse the baby and he would pass me.  He made it to the hotel before me and got a room then when I got there we carried the sleeping children up.  Somehow I managed to wake up early even though I was exhausted.  Brent left an hour before we did so I could get the kids breakfast and let them eat it as we started out again on our journey and there he was again.  Cordell had come again and even though he was there I was totally on edge.  It was March and the wind was blowing through the canyon like a hurricane.  At one point I caught up to Brent and saw the truck and trailer struggle to stay upright under the force of the wind.  Everything about the drive was intense and difficult but we were not alone and we felt peace. I was sure that Brent was receiving the same heavenly help that I was.  A half an hour outside of Las Vegas, out in that barren dessert, I felt Cordell leave, like a butterfly that takes off because it has somewhere else to go.   I cherish the time I got to spend with him and was so grateful my big brother came to take care of his little sister one more time.  I can’t tell you how much I still miss him, all these years later.

We got to our town house an hour before the management closed on a Saturday and then realized we never had the utilities turned on and would have to wait.  I was moving into my old roommate’s ward and she had managed to scramble a few guys together at the last moment and our family that lives in Las Vegas showed up.  Brent and I were spent down to the last part of us and we still had to unpack.  Brent looked beat up and exhausted and we didn’t see any way that we would be able to stay in our house that night without utilities or go to church in the morning.  The elder’s quorum president seemed especially concerned and didn’t want to leave us.  We were obviously a disaster that had plopped ourselves into Las Vegas and into his ward. He left for a while and came back with a few flashlights and camping lamps and told us if we needed his help the next day even though it was Sunday not to hesitate to call him.  I remember him telling us if we at least needed help with setting beds up before it got dark the next day to please call him.  Even though it was the Sabbath we felt we had no choice but to collect ourselves instead of going to church the next day.  We couldn't even attempt to find church clothes in the chaos.  Brent’s sister Stephanie let us come and stay at her house and sleep in their beds.  It was marvelous; we even got a quick shower.

The next day we desperately tried to get organized but between the kids, a new born and not knowing where anything was I reached a point that I felt we had no other choice but to call Shawn, our elder’s quorum president and ask him for help setting up the beds.  He seemed relieved that we had called and promised he would be over as soon as he was home from church.  He came in and an hour later he had not only set up our beds before dark he had helped us to organize the boxes and furniture so we could maneuver around the house.  It was one of the most Christ-like acts I have witnessed in my life.  Not once did he judge us or make us feel that we had no right to interrupt his Sabbath but he helped a suffering family with a pure and serving heart, only concerned for our welfare. 

The next day a couple of miracles happened and we got both our electricity and our gas turned on.  I've heard horror stories since this experience that a number of people have gone weeks without gas in the Vegas area so it was a great blessing.  There was also an investigation done with the moving company and they eventually returned our nonrefundable down payment.  It took a full month to get the house organized and another month to get the garage to a point of parking both our cars in it.   Things weren’t immediately better.  In fact it took months upon months and things even got a little worse again before they got better.  But, eighteen months later, we are finally, slowly but surely seeing a light at the end of the tunnel.   I will never forget the help we received during that time from angels both on this side of the vail and the other.  As I have written this story I can see the miracles intertwined with the sorrows and I am truly grateful for the opportunities that have helped me to become acquainted with God.

Saturday, July 11, 2015

I Always Thought I Would Be A Good Mom And Then I Had A Kid.





I was recently at a women’s house in my ward for a swim day activity and we happened to start a conversation about how difficult some kids are and how they come to this earth that difficult.  I started to talk to her about Parker and how impossible he was when he was young. During our conversation she looked at me and said, “How did you survive?”  Then I remembered that I almost didn’t.   I really appreciated her empathy.  In this day and age if you start talking about how difficult your child is people don’t usually want to be a part of the conversation.  We still have our moments with Parker now, but with some hard work he is finally maturing and growing out of some extremely difficult behavior. 

I always wanted to be a mom.  I started babysitting at a young age and had quite the little business going for me, especially the year I was home schooled.  I was also a baby snatcher in the church I grew up in.  I would hunt for the babies and ask if I could hold them.   I didn’t even really ever want to go to college.  I struggled with school because I’m dyslexic and I just knew I could be successful as a stay at home mom.  I wanted to meet my dream guy, get married and start having babies.   To this day I just adore the 0-6 month age group and then they grow up.  They are hardly ever babies!  It’s like your enjoying your baby then you blink and something happens to them.   It’s a crisis I have experienced three times now.  

My grandpa came to live with us around the time that I started high school because he had Alzheimer’s disease and it essentially ended my baby sitting career.  My parents would desperately need to get some time away by the end of the week, so I would stay with my grandpa and watch him one weekend night a week.  I left for collage not long after he passed away and when I needed a college job I realized I had the perfect skills for working in a nursing home.  I became a CNA and that’s how I supported myself through college and even during a “break from college to figure out what I was going to do with my life”.  Eventually I started to work at a rehabilitative unit at the University of Utah Hospital and met some occupational therapists and certified occupational therapy assistants also known as OT’s and COTA’s.  Since I was entering my mid-twenties and my plans to just get married and have babies wasn’t really working out for me, going to OTA school seemed like a really good back up plan.  I liked that I could still be a practitioner but that I could get an associates degree instead of a master’s degree (since I wasn’t awesome at school). I also liked that I could work in pediatrics if I wanted to, after all I did love babies.  

I started down this road and was accepted into the program and then I met my dream guy.  Brent was taking his finals during his second year of law school when we meet and by then I was absolutely determined to finish OTA school and work as a practitioner.  Since Brent was still in school I moved forward with plans for school myself.  At the time I don’t think I could have realized what an intervention from God that OTA school was and that it was God that was giving me the drive to accomplish it. 

 A few years before I had gotten married I became aware that it may be difficult for me to get pregnant and have children.  I was diagnosed with Polycystic Ovarian Syndrome also known as PCOS and didn’t really understand how difficult it would be to get pregnant until I was in the midst of turmoil and distress.   While I waited to get pregnant and often wept, I finished school in Las Vegas where Brent had gotten his first job out of law school.  I accepted a job at an outpatient pediatric therapy center.  They had a mentoring program at that time for new graduates that lasted two months and it was perfect because there is no way to throw someone into that kind of work without training them first.  I watched the OT work with some clients that had really difficult behavior and severe tantrums.  I used to wonder how on earth their mothers survived.  I never have been a really judgmental person.  Even before I had children I wasn’t dumb enough to say things like, “I’ll never do that when I’m a mother” or something even more ignorant like, “My children will never behave that way”.  Having this first job out of school in pediatrics humbled me even further.  The first time I was given a tantruming child and had to figure out what to do to get through a therapy session I was so lost and seriously considered quitting and going into geriatrics where I was comfortable.  I am so glad I didn’t because working in pediatrics became my training to eventually become Parker’s mom.

I talked my husband into moving to Colorado (that was a whole other blog post).  Denver has a lot of pediatric outpatient clinics that focus only on Sensory Processing Disorder and I was very interested in working at one of them to gain more knowledge about the disorder.  I worked at a sensory clinic for a year and received even more valuable experience before going to work for a contractor that contracted therapy services to the local school near my home in the mountains.  A couple months after I started working there some fertility treatments finally worked and I found out on Brent and I’s four year anniversary that I was finally pregnant.  My prayers and the desire of my heart was finally fulfilled.  At this time I thought that I had such good training and experience in pediatrics that I had a pretty good chance at being a pretty good mom.  I already knew how to discipline and I understood how to deal with some difficult situations and I was pretty confident.  Then God said, “We’ll see about that” and shook my confidence to the core.


This first night after Parker was born I started noticing that he might struggle with some sensory issue.  He would only calm if he was tightly wrapped and his head was moving.  Then he had his first tantrum, yes a new born can have a tantrum, it was the shot heard round the world.  Parker preferred only nursing on one side.  I’ll spare you the details since we are talking about breast feeding.  I just remember the feeding specialist shoving his wide screaming mouth over the non-preferred side and saying he would eventually give up and feed.  Yeah he gave up, a week later.  And so it began.  I was elated and a bit blinded by his moodiness because I was so incredibly grateful that I was finally a mother and man the kid was sooo cute!  (He still is.)  At first it started out that Parker would be in a decent mood for about a month then an awful mood for a month.  I think it was related to his teething.  Then he wasn’t reaching his benchmarks.  He was older than I expected when he finally rolled over and started sitting.  He would just sit and cry in anger because he wanted to move but didn’t know how.  If I tried to help him he would get angry with me so I took him to the physical therapist I shared an office with.  He was 10 months old and talking but not crawling.  She told me to bring him in the next day for a community early childhood screening.  Of course he qualified and so began our journey.


I remember being grateful for the help but also feeling like I could cry at any moment that my child was struggling.  Every once in a while I would have to push away feelings of panic.  Parker started to crawl for the first time with the physical therapist’s help when he was 12 months old.  When he was 15 months old he went into one of his grumpier moods and stayed that way.  In fact it got worse.  It was during this time that I found out I was expecting our second child.  I had gotten pregnant on birth control and it was such a shock and such bad timing with Parker’s constant anger that I cried with the news and Brent went on a walk for an hour.  I wanted motherhood so desperately but when it came it took my breath away and it was so much more difficult than I could have ever expected.  Parker took his first few steps at 18 months old, also with the help of a physical therapist. I started to realize that it was transitioning that was so difficult for him and why he was delayed.  Parker could not handle transitions.  (That’s probably why it took so long for me to get pregnant, it took him that long to transition to becoming a part of our family.)  With each transition of the day a war would begin.  If he touched something he wasn’t supposed to and I told him no he would go into a psychotic, violent fit that would last for at least an hour, sometimes an hour and a half.  I would have to put him in his crib and he would rage, scream at the top of his lungs and throw himself into the railings.  I was petrified of him but I was also stubborn myself and I knew the consequences of not being consistent would be severe.  Every time Parker did something he needed to be corrected on (like climbing onto the table and trying to swing from the chandelier) my heart would race and I would know what I was in for.  Most days he would start a fit, scream for an hour to an hour and a half, finally calm down and then ten minutes later start all over again.  One day he screamed for almost eight of his awake hours.  I remember putting him down on his bedroom floor, moving away then I started to hit my fist against the floor yelling, “You have to stop screaming!!  You just have to stop screaming or we’ll never survive!!”  I know it sounds dramatic but I felt desperate.  That night I prayed and told Heavenly Father he had made a huge mistake.  I wasn’t a good enough person to be Parker’s mom and he should have sent him to someone else.  Brent was approaching his second job change since moving to Colorado and I was approaching the delivery of our second child.  I was still working two days a week, thank goodness, or I would have lost all sanity.   

I was completely isolated in our mountain home.  No one ever came by and because we lived an hour from Denver the only time I would leave the house was go to work or to go on hikes unless it was in the winter and it was too cold outside.  One time I tried to reach out to my mom and tell her how bad it was and it didn’t go over very well.  She thought I had a normal kid and I was just being a complainer.  A couple of years later we moved in with my parents while Brent was out of work and at that time she acknowledged that I had it very hard.  She explained that she never had the difficulties with my siblings and I that I was having with my children.  It made me feel so much better to hear that because I felt validated. 

The depression of my situation hit hard after I had Abby.  She was the sweetest baby and so happy but she did not sleep well.  I was dealing with her crying all night and Parker screaming all day.  Sometimes I would walk out to my porch look at the beautiful scenery then cry.   I do believe that Abby was sent to me to bring joy to my heart and keep me from losing all hope.  If I would have had her first and only had to deal with some rough nights I would have thought that being a mother was easy.  Not long after having Abby we had driven down to a mall in Denver and Brent had taken Parker on a merry-go-round.  When it was over Parker couldn’t understand why he had to get off and had such a violent tantrum that Brent had to hold Abby while I restrained Parker on the floor of the mall.  Parker was so crazed and out of control I wasn’t sure how we were going to get out of there.  I fully expected someone to call CPS on us even though I was doing what I had been trained to do under those circumstances.  Afterword Brent was so disturbed by the ordeal that he kept talking about the man in the bible whose son was possessed by demons and how upsetting the situation had been for him.  A week later I came home from the store and carried in some groceries.  I had to put Abby to bed but Parker wanted to stay outside.  We lived in a condo and I had to bring him in.  He became so angry he screamed out all the air from his lungs then stopped breathing and fell on the ground in convulsions and turned gray from the lack of oxygen.  I called 911 and they were on their way when he started breathing again.  At least he got to see a fire truck and have the undivided attention of six firemen.  After that I knew we needed more help than we were getting.  I may have a background in pediatric occupational therapy but this was bigger than me and my perspective was off.  I was way too close to the situation to know what to do and I called his IFSP case manager.  She had a behavior specialist scheduled to come do an evaluation within the week.  


The behavior specialist was concerned about high functioning autism and confirmed that she felt he had sensory issues as well.  She wanted me to schedule an evaluation with the Children’s Hospital in Denver where there was a two month waiting list. We started working with the behavior specialist to get Parker to go out into public and to practice transitioning.   We started with a park and some strategies to use in order to leave the park then we went to the children’s museum with a picture schedule and survived.   A week later I went by myself to the same children’s museum.  I was able to get him to go from exhibit to exhibit but I wasn’t able to get him to leave.  Parker went into a violent tantrum.  I was able to get him to a corner where he wouldn’t hurt anyone while I put Abby in the stroller.  My heart was pounding and my emotions were rising when a women who was there with her grandchild walked up behind me, not to help but to glare.  She walked up to where we were at, folded her arms and gave me the most evil, awful stink eye.  I wouldn’t look at her because I didn’t want her to engage me.  She just stood there watching me struggle and wanting so badly to tell me what a bad job I had done and what a horrible mom I was to raise such an awful child.  To this day I wish I would have asked her if she was an expert in autism and if she had come over to offer her advice.   I carried Parker over my shoulder while he kicked me and hit me and I pushed Abby in a double stroller with the other hand.  I was completely alone in the world.  Totally, completely alone.  The place was full of people who just watched me struggle to get out.  Once I got through the door a women with her seven year old saw me and called out, “Here, let me help you!”  Then I lost it.  The women kept telling me, “It’s ok, hold it together for your kids then you can cry.”  She helped me load up the kids and the stroller.  That is how it should be folks.  No mother alone, no parent alone.  No judgmental glares, no nasty looks.  You don’t know what is going on.  Maybe someone’s world is falling in on top of them.  Maybe that child that looks normal isn’t your typical child.  What is normal anyway?  None of us have a normal life.  We need to be there for each other, reach out to each other. 

Parker was not diagnosed with autism but we were told they felt he had Sensory Processing Disorder.  Years have gone by.  We have had psychologist, behavior specialist, occupational therapist, IFSP’s and IEP’s. We went from using cribs to locked bedroom doors and car seats when violent tantrums would happen in public.  We have had to be consistent and unchanging.  If we give an inch Parker will take miles and miles.  Sometimes people think I’m a mean mom because of how stern I have to be with him.  I didn’t think the storm would ever let up but Parker has gotten so much better.  He was pretty difficult with moments of drawn out anger until he was about five years old.  It helps that our lives have become a lot more stable and consistent.  We still have at least one big move ahead of us and I’m sure that transition will stir things up a bit but until then Parker has been a little ray of sunshine for the last year and a half with much smaller moments of anger.   


I think about how much being a Pediatric COTA helped me navigate my first few years of being a mom.  The opportunity came for me to go to school and God was like, “You’re going to need this” then he gave me Parker.  I needed my education to help know what to do for Parker but it was also a great blessing during our times of financial distress which were inter weaved in our moments of a complete loss of how to parent our first child.  I’m a better practitioner because of being Parker’s mother.  I call the parents of my students and I can problem solve with them and show them empathy in a world that is foreign and hard to navigate.   As I grew up I never imagined that I would be someone that not only went to college but wasn’t a full time stay at home mom.  I now have three children and I still only work two days a week with summers and holidays off so I am at home a lot.  I found a job since moving back to Las Vegas that is perfect for me and for my family and I’m grateful that I’m still able to work and learn and I’m grateful that God had a plan for me that was different than the plan I had for myself.